『About IBD』のカバーアート

About IBD

About IBD

著者： Amber J Tresca
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概要

 Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.©2025 Mal and Tal Enterprises; ©2025 Cooney Studio 衛生・健康的な生活 身体的病い・疾患
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  • Epidemiology, Big Data, and Biologics in Pregnancy

    Epidemiology, Big Data, and Biologics in Pregnancy
    2026/03/24

    Episode transcript and more information at: https://bit.ly/AIBD198

    What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a groundbreaking project using decades of real-world data to understand how biologics affect a pregnant woman and her baby. The BIONIC study is designed to empower patients to make confident, evidence-based decisions about their own health and their children's future.

    Timestamps
    • 00:00 – Introduction to Dr. Sonia Grandi and Dr. Christina Longo.
    • 04:14 – What exactly is an Epidemiologist?
    • 06:33 – Why childhood asthma research led to the BIONIC Study.
    • 11:05 – Why children and pregnant women are historically excluded from trials.
    • 13:00 – Defining "Remission" in children: Why it's more than just labs.
    • 17:01 – The BIONIC Study explained: Safety and biologics in pregnancy.
    • 22:04 – The Patient Advisory Committee: Why lived experience matters.
    • 25:52 – The "Grind" of Research Funding: How projects actually get built.
    • 32:21 – Fun & Hobbies: Puzzles, running, and the "BIONIC" spirit.

    Find Sonia Grandi, MSc, PhD at:

    • The Hospital for Sick Children (SickKids): Sonia Grandi, MSc, PhD
    • Dalla Lana School of Public Health: Sonia Grandi, MSc, PhD
    • Lab: IMPOWER Lab at The Hospital for Sick Children (SickKids)
    • LinkedIn: @sonia-grandi

    Find Cristina Longo , PhD at:

    • Université de Montréal: Cristina Longo , PhD
    • CHU Sainte-Justine: Cristina Longo , PhD
    • LinkedIn: @cristina-longo-67656040

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell Health: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Instagram: @about_IBD
    • YouTube: @AboutIBD
    • Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • YouTube: @MacCooneyComposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    40 分
  • The Insidious Reasons Why IBD Destroys Sleep

    The Insidious Reasons Why IBD Destroys Sleep
    2026/03/10
    Everyone needs sleep, but so many of us struggle to get enough. People living with IBD know that a good night's sleep can feel like a distant dream, whether it's pain, urgent bathroom trips, or racing thoughts keeping you up. But why exactly does IBD disrupt our sleep even during remission? And what is your sleep telling you about the risks of a flare-up? Episode transcript and more information at: https://bit.ly/AIBD197 Chapters: 00:04 Introduction and Host Background 01:32 IBD and Sleep: The Problem 03:00 Why Sleep Matters for IBD 04:14 Defining Sleep Disturbance in IBD 05:23 Inflammation's Role in Sleep Disruption 07:08 Wearables and Sleep Research in IBD 08:29 Mental Health, Pain, and Medication Effects 11:06 Why Prioritizing Sleep is Crucial 12:30 Practical Tips for Better Sleep 14:57 Communicating Sleep Issues and Seeking Support 16:12 Episode Wrap-Up and Resources 16:20 Credits and Outro More Information on Sleep: Alien: How IBD Inspired an Iconic Movie: 10 Tips to Get More Sleep Talking to Your Doctor About SleepI Am So Tired Have You Tried Yoga? – An IBD Community PollA Meditation Journey – Week 1Struggling to Sleep? These 11 Foods Could Help You Rest Better 13 Foods to Eat Instead of Taking Melatonin for Better SleepThe Best Time to Eat Dinner for Better Digestion and Sleep Sources: Su XY, Wang YN, Huang YH, Dai C. The sleep quality and its association with disease activity in patients with inflammatory bowel disease: a meta-analysis. Rev Esp Enferm Dig. doi:10.17235/reed.2025.11305/2025.Zhang JZ, Song XZ, Song XN, Shen YL, Tang H, Li H. Prevalence and risk factors of sleep disorders in inflammatory bowel disease: a cross-sectional study. Int J Colorectal Dis. 2024;39(1):140. doi:10.1007/s00384-024-04712-w.Chaemsupaphan T, Pimolsri C, Subdee N, et al. Poor sleep quality is common and independently associated with disease activity and poor quality of life in inflammatory bowel disease: a long-term follow-up study. Therap Adv Gastroenterol. 2025;18:17562848241311142. doi:10.1177/17562848241311142.Kuzoian S, Jerson B, Brimacombe M, Schneeberg L, Hyams JS. Sleep tracking and sleep hygiene counseling improve fatigue in pediatric patients with inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2025;81(1):62-68. doi:10.1002/jpn3.70066.Xu TY, Zhang Y, Zhao SL. Association of Poor Sleep Quality With Adverse Outcomes in Patients With Inflammatory Bowel Disease: A Systematic Review and Meta-Analysis. J Dig Dis. 2024;25(11-12):664-673. doi:10.1111/1751-2980.13328. Find Amber J Tresca at: AboutIBD.com: About IBDVerywell Health: Verywell HealthFacebook: @aboutIBDTwitter: @aboutIBDPinterest: @aboutibdInstagram: @about_IBDYouTube: @AboutIBDhttps://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposerInstagram: @maccooneycomposerYouTube: @MacCooneyComposerWeb: Cooney StudioTheme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    17 分
  • How to Harness AI for Good Featuring Michael Tresca

    How to Harness AI for Good Featuring Michael Tresca
    2026/02/24
    Artificial intelligence (AI) is being utilized in healthcare for many purposes. Patients are wondering how they can safely and effectively use AI tools to educate themselves and to manage their health. Amber and guest Michael Tresca discuss what AI is, how it works, and why skepticism and source verification are essential. They highlight practical, lower-risk ways patients might use AI, such as organizing personal health data, drafting appointment questions, and explaining medical terms. The emphasis is on ongoing education, privacy concerns, responsible use, and the importance of "trust but verify" when using AI for critical health decisions without professional input. Episode transcript and more information at: https://bit.ly/AIBD196 Sign up for Mike's AI newsletter: AI Unplugged on LinkedIn Timestamps: 00:05 — Introduction and Guest Welcome01:20 — Recap of Previous Episode and Relationship Disclosure02:16 — Defining AI and Common Misconceptions04:14 — AI in Clinical and Patient Use05:11 — AI in Everyday Search and Unintentional Use06:39 — AI Hallucinations: What They Are and Why They Happen10:13 — Importance of AI Showing Its Work and Sources10:58 — Challenges in Understanding AI's Reasoning14:33 — AI Training Data and Source Reliability15:31 — Risks of Outdated or Inaccurate Health Information21:35 — AI's Responsibility in Providing Answers23:13 — Tolerance for Error and Regulation in AI24:02 — Transition to Patient Use Cases24:19 — Using AI to Organize Medical Information26:23 — Drafting Questions for Appointments with AI27:19 — Tracking Symptoms or Diet with AI28:22 — AI for Coping with Brain Fog or Fatigue31:10 — Listener Feedback: Avoiding AI32:31 — Listener Feedback: Privacy, Data Breaches, and Environmental Concerns34:45 — Listener Feedback: Worry About Errors36:29 — Listener Feedback: Using AI for Definitions and Basic Research37:24 — Listener Feedback: Using AI to Explain Test Results40:31 — Listener Feedback: Healthcare Providers Using AI for Notetaking43:30 — Ethics of Recording Medical Visits44:42 — Conclusion and Final Thoughts46:25 — Outro and Credits Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstarInstagram: @world_of_welstarFacebook: @worldofwelstarMeWe: http://tinyurl.com/MeWeTRPGThreads: http://tinyurl.com/threadsWOWBluesky: https://blskyl.ink/worldofwelstarAmazon: http://amzn.to/41jMn5hEN World: http://tinyurl.com/ENWRPGDrive Through RPG: http://tinyurl.com/DTRPGMNTPatreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    47 分
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