『Living with Apert Syndrome: Xavier's Story』のカバーアート

Living with Apert Syndrome: Xavier's Story

Living with Apert Syndrome: Xavier's Story

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今ならプレミアムプランが3カ月 月額99円

2026年5月12日まで。4か月目以降は月額1,500円で自動更新します。

概要

In 2019, Katy Martins welcomed her fourth child, a son named Xavier. Shortly after his birth, Xavier was diagnosed with Apert Syndrome—a rare genetic condition that affects approximately 1 in every 65,000 to 88,000 live births. Today, Katy sits down with Tahnee to share their family’s journey. Tune in as we explore what Apert Syndrome is, how it affects those who live with it, and the strength and resilience behind their story.

https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/apert-syndrome/

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