Welcome to the ‘The Midnight Debrief’

A new kind of episode featuring a new Host, Steph Williams, the midnight debrief spin off series focuses on the role of caring alongside MND,

Like myself Steph is a ‘carer’ Steph cares for her husband Mark, she is a Mum, Wife, MND advocate supporting families through Steph and Mark’s foundation the MNDefiance Trust.

Steph and I have become close friends as we navigate this ‘Shit Show’ of a Journey that is MND, during this time Steph and I often message each other at all hours, normally around midnight, discussing our day or what tomorrow will hold in store, so we thought, lets take these to the podcast.

We will be talking all things caring, parenting, friends and family, Holidays, MND Community, finances, relationships and intimacy.

We will be talking about some very serious topics, but what I can guarantee is that you will be laughing alongside us and the occasional tear.

We would love to have you involved in our conversation so please ask any questions and will will be sure to talk about these on the podcast.

Steph and I look forward to sharing more of our journey, stories, our successes and absolutely our mistakes or Fuck up’s as we like to call them

A warning…there will be some explicit language used during the episodes.

Thank you

Steph & Martyn

In the latest episode Anna and I chat with James Smith, Husband, Dad, MND Warrior and MND Advocate.

James spends his time in front of the camera showing the world what living alongside MND is truly like.

but today he's behind the Mic as James 'Speaks His MND'

We talk about 'life before the shift, the impact on family, parenting alongside MND and what keeps him up at night?

Thank you, James

And thank you to everyone for taking the time to listen to our past episodes

We have so many amazing people joining us in the coming weeks.

✌️ & 🧡🧡

Anna & Martyn

On this weeks Episode Anna and I had the privilege of speaking with Abbie Pilkington,

Abbie sadly lost her younger brother Jordan 'Jord' 'Jordie' Pilkington in August 2024 after a 5 year battle alongside MND.

Our conversation with Abbie focuses on grief and celebrates Jordan's legacy.

We would like to Thank Abbie for her time, honesty and her continued dedication to the fight against MND

We send our love to the Pilkington Family & Friends.

✌️ & ❤️

On this weeks episode Martyn and I chat with Rob Hasler, Rob was diagnosed with MND in October 2024,

This episode is emotional, raw, honest, with plenty of tears and laughter.

We talk about Robs life before MND, the early days, the impact on his family, the heartbreak in telling his children.

we talk about why 'everyday matters' is so important, the generosity of his friends and family and his local community and the impact and lifeline this has had.

Then we move on to Anna's inquisition, 3 quick fire questions, 'The Challenge', 'The Soundtrack', 'The Time Machine'

We hope you enjoy this episode as much as we enjoyed recording it and speaking with Rob.

Anna & Martyn

On this weeks episode Anna and I chat with An Actor across, Tv, Film and Theatre, an MNDA ambassador for 24 years, Probably best known for his role in coronation street playing 'Billy' husband of Paul, during one of coronation streets most impactful story lines in recent years.

The Amazing Daniel Brocklebank

We talk about life alongside MND and his beloved Grandfather, Daniel's Advocacy work for the MND community, the impact of the Corrie storyline, what's next after 'Billy' and we then have Anna's inquisition.

3 Questions to reflect and inspire.

What a lovely human being, who has a huge heart and a lot of love for the MND community.

Thank you

Anna and Martyn

Welcome to SpeakUrMND podcast a Foreword by Anna,

SpeakUrMND has evolved, SpeakUrMND was a place for me to share my family's experience living alongside MND, but what I've always known is that everyone's journey is unique, everyone has a different 'Why', everyone has a story to tell, I've been so inspired by the individuals I have met on this journey and would like them to SpeakTheirMND

What makes us get out of bed every morning to face MND head on.

What's been the biggest challenges to overcome.

What makes you laugh?, what makes you Cry?

It's MND Awareness but goes a little deeper, there will be laughter and a ton of tears I'm sure.

We will be chatting to some amazing individuals from the MND community, Warriors, Carers, Family & Friends, Fundraisers, Health and Social Care professionals, charities any one with a story to tell and knowledge to share,

I really hope you enjoy these episodes

Hopefully through these podcasts you will finish leaving uplifted, motivated, educated and an a better understanding of life alongside MND for individuals, carers and the wider MND community.

Thank you for listening, your support and your love.

Martyn & Anna