『The Rare Remix』のカバーアート

The Rare Remix

The Rare Remix

著者： Rare Remix Team
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The Rare Remix is a podcast for families navigating rare disease, disability, caregiving, accessibility, developmental differences, and life after a diagnosis changes the rhythm of everything.

Hosted by Bryan and Lindsey, The Rare Remix features real conversations with parents, caregivers, advocates, experts, and anyone on a remixed journey.

Together, we explore the everyday realities that families quietly learn to navigate, and discuss potential solutions based on first-hand experiences.

This may not be the life you imagined. It’s a remix.

2026 Rare Remix Team 人間関係 子育て 社会科学
エピソード
  • Episode 03 - Au-Kline Syndrome: a Conversation with Dianne

    Episode 03 - Au-Kline Syndrome: a Conversation with Dianne
    2026/06/21

    Episode 3 features Dianne, mom to 8-year-old Dru, who lives with Au-Kline syndrome. We discuss the challenges of an ultra-rare diagnosis, navigating life with AAC, and the value of asking for help along the way.
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    34 分
  • Episode 02 - Rett Syndrome: a Conversation with Karen

    Episode 02 - Rett Syndrome: a Conversation with Karen
    2026/06/21

    Episode 2 features Karen, mom to 30-year-old Lynzie, who lives with Rett syndrome. We talk about the unique timing of Lynzie’s diagnosis, the challenges of making tough decisions in adulthood, and the importance of advocacy. Don’t miss this heartfelt conversation.
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    40 分
  • Welcome to The Rare Remix

    Welcome to The Rare Remix
    2026/06/19

    Bryan and Lindsey introduce The Rare Remix, share the story behind the podcast, and explain why they’re creating a space for real conversations, practical insight, and solutions for families navigating life with a new rhythm.
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    16 分
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