エピソード

  • The Day the World Tilted
    2026/04/06

    In this powerful special episode of Through Myeloma Eyes, Solomon Alexis shares one of the most personal chapters of his journey — the sudden loss of his mother, a woman deeply woven into every step of his cancer story.

    What was meant to be a simple birthday visit to Saint Lucia became a moment that changed everything. Solomon reflects on his mother’s quiet strength, her unwavering presence across time zones, the prayers before chemotherapy, the hospital visits, and the way she held his fears alongside her own.

    When she passed unexpectedly, the world shifted — not just in grief, but in identity, protection, and the meaning of support. This episode explores the intersection of cancer, loss, love, and the invisible ways parents remain our anchors, even in adulthood.

    #myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice

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    10 分
  • The Weight of Staying: Survivor’s Guilt
    2026/03/30

    In this deeply reflective episode of Through Myeloma Eyes, Solomon Alexis opens up about one of the most complex emotional landscapes of living with cancer: survivor’s guilt.

    Through powerful personal stories — from losing his younger brother at 21, to the heartbreaking loss of his niece during the pandemic, to the passing of friends and others walking the same myeloma road — Solomon explores the quiet question many survivors carry:

    “Why am I still here… when they aren’t?”

    #myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice

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    17 分
  • More Than a Data Point: Patient voice and advocacy
    2026/03/23

    In this episode of Through Myeloma Eyes, Solomon explores what patient voice really means — beyond slogans, beyond tick‑box exercises, and beyond the margins of clinical documents.

    Drawing on years of involvement in research design, clinical trial reviews, and patient advisory groups, Solomon highlights a simple truth: Data shows what is happening… but lived experience explains what it means.

    From the hidden realities behind quality‑of‑life scores to the honesty found in patient forums, this episode uncovers why patient insight isn’t a “nice to have” — it’s essential. Solomon shares how patients bring context, clarity, and credibility to science, ensuring research answers the questions that truly matter.

    This is an episode for clinicians, researchers, patients, and anyone navigating both worlds. A reminder that patient voice isn’t noise in the system — it’s wisdom at the table.

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    9 分
  • M-Power with a D: My Daratumumab Day
    2026/03/02

    In this episode, the host shares his experience starting daratumumab (D) as the next step in long-term multiple myeloma care. He describe the decision-making conversation with his medical team, the treatment day with pre-medications and monitoring, and the emotional rhythm of living with an incurable cancer.

    Rather than dramatic moments, the episode emphasises continuity: diagnosis, treatment, stability, and adjustment. Solomon encourages listeners to ask questions, take time with decisions, and adapt as the journey evolves.

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    11 分
  • Who Stays, Who Goes: Through Myeloma Eyes
    2026/02/22

    Solomon Alexis reflects on how myeloma reshapes relationships — who fades away, who quietly stays, and the awkward moments in between.

    He explores the cost of protecting loved ones, the value of steady presence over grand gestures, and invites listeners to notice a relationship that surprised them since illness entered their life.

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    10 分
  • When Lightning Strikes Twice: Facing a Second Cancer
    2026/02/16

    Host Solomon Alexis shares a personal account of receiving a second cancer diagnosis — treatable thyroid cancer — while already living with an incurable cancer. He describes the creeping fear, the clinical realities of surgery and recovery, concerns about his voice, and the visible and invisible scars that follow.

    This episode emphasizes that relief and anxiety can coexist, survivorship is not a straight line, and it’s okay to feel scared. Solomon encourages listeners to take time, accept support, and hold onto hope as they navigate unexpected chapters.

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    8 分
  • Looking for Answers Without Losing Your Mind
    2026/02/09

    Episode 15 of Through MYeloma Eyes explores how to search for trustworthy information after a cancer diagnosis without becoming overwhelmed. Solomon guides listeners to prioritise their health team, reputable organisations, and supportive communities while avoiding late-night panic, miracle-cure claims, and harmful comparisons.

    This episode offers practical advice on setting limits, asking questions of your care team, and choosing information that helps you stay present and sane through uncertainty.

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    11 分
  • Through Myeloma Eyes: Life After Diagnosis — A 7/10 Reality
    2026/02/02

    In this episode Solomon Alexis shares an honest, unfiltered look at life after a multiple myeloma diagnosis, covering pain, sleep, mobility, emotions, finances, friendships, and daily routines.

    He gives personal ratings for symptoms like pain, neuropathy, fatigue, and mobility, explains social and financial impacts, and describes what improves his quality of life — concluding his current overall quality of life is 7 out of 10.

    Through Myeloma Eyes offers lived experience, resilience, and practical perspective for anyone navigating cancer.

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    15 分