Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures, ultimately ending in the colostomy that has significantly maintained Zacari's quality of life.Enjoy the episode

Hirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's.Originally thought to be short segment, until the biopsy found just a few centimetres of colon with living ganglion cells, we talk through the ups and downs of surgery, as well as 2 bouts of enterocolitis.Finally Laura talks about the incredibly important topic of parental mental health, and how the need to be well in yourself is vital for your child.

This week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis.

In this episode we discuss preparing for surgeries, from both the parental and child point of view as well as how stomas can affect the body ability to retain water.

Please enjoy the episode!

Actor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time!

Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of the most loved and respected personalities in the country.

This story is full of incredible highs and lows when it comes to Hirschsprung's, and a huge thank you to Denise and her team for making this episode possible.

Enjoy the episode!

Sadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease.

Whilst the likelihood of Hirschsprung's was initialised dismissed , although the classic symptoms were present, a hospital in London (Ontorio) confirmed this as TCHD.

Later in the episode we talk about the future for Sophia and the funding needed to see Dr Wood for her pull through operation.

To contribute to Sadie's go fund me for Sophia's surgery click below

https://l.instagram.com/?u=https%3A%2F%2Fgofund.me%2Fb8f9bf96f%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGndj_B6xpbT38Rj134NmgWw37M8tYKAHweA-c4KxR8mBr1H6uFW7IWBLfPfr0_aem_kqKRbLlLBDLehYCKPK0Img&e=AT5Rvvkn_Dg2Z9ybEHwc8ACeK1wytrbuYR1RpUnaSLfFdj6stB3dShjgq8Dd33eplU9gXQG55mYlhgXxELqhzSmWkGi4u0ok5T2yPtNtmA

Follow Sadie - @sadieray__

This week I am joined by 2 guests as Lauren and Kieran talk about their 3 year old son Freddie, and his journey with Hirschsprung's.

Lauren talks through Freddie's 3 surgeries and Kieran talks about stoma care, as they both share their thoughts over the last 3 years.

Enjoy the episode!

World renowned composer and BAFTA award winner Paul joins me to talk about his daughters experience with Hirschsprung's.

Later in the episode we talk about Paul's incredible kilt walking exploits over the last 13 years, stay tuned to listen to how Paul achieved 'The Big One' in memory of his friend Aidan.

Enjoy the episode!

Follow Paul - @paulleonardmorgan

Just 5 1/2 months after giving birth to her fourth child, Ann-Marie joins me to talk about her sons journey so far with Hirschsprung's.

We go through the last 5 1/2 months, with helicopter rides, thunderstorms and a sea of emotions, as Ann-Marie shares her thoughts on that time.

Later in the episode Ann-Marie shares some tips and tricks that have worked for her son Christopher when it comes to diet and stomas.

Enjoy the episode