『Untold Stories: Life with a Severe Autoimmune Condition』のカバーアート

Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

著者： iHeartPodcasts
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For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

2026 iHeartMedia, Inc. © Any use of this intellectual property for text and data mining or computational analysis including as training material for artificial intelligence systems is strictly prohibited without express written consent from iHeartMedia 生物科学 科学 衛生・健康的な生活 身体的病い・疾患
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  • Amanda: From CIDP Diagnosis to Discovering Her Purpose

    Amanda: From CIDP Diagnosis to Discovering Her Purpose
    2026/07/01

    Amanda shares how a CIDP diagnosis changed nearly every aspect of her life, ultimately leading her to become a powerful advocate for the rare disease community. Join Martine Hackett as she explores the emotional impact of diagnosis, the power of connection, and how Amanda turned her experience into advocacy to help others feel seen, supported, and less alone.

    See omnystudio.com/listener for privacy information.
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    27 分
  • Alicia: The Long Road to Answers with Seronegative MG

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    Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection and shared experiences can help people navigate even the most uncertain journeys.

    See omnystudio.com/listener for privacy information.
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    24 分
  • Mel & Lindsay: Different Diagnoses. Shared Experiences.

    Mel & Lindsay: Different Diagnoses. Shared Experiences.
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    See omnystudio.com/listener for privacy information.
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    28 分
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